Thirty-eight years. That's how long it's been since I had an accident that brought my Chiari symptoms to the forefront. No, the accident did not cause the Chiari; the problem had been there since birth—I just didn't know about it. Because Chiari was relatively new and most doctors didn't even know about it at the time, no one could figure out what was going on. Actually, any doctor I saw thought it was "all in my head." (They really didn't know how accurate that was!)
The Arnold-Chiari Malformation that I have is due to my cerebellum being too far down and reaching into my spinal cord. The cord puts pressure on my brain, causing headaches, double vision, difficulty swallowing, dizziness, neck pain, unsteady gait, weakness, and ringing in my ears. My symptoms began in 1982 as headaches. Other symptoms started appearing a few months later. I went to several different eye doctors and told them about the double vision. At the time, the double vision would mainly occur when I was under a lot of stress. Since you can't schedule stress, they couldn't see it and really didn't believe me. That is, until late 1987 when I was doing my student teaching. I had an eye appointment after an especially stressful day at school. The double vision was so bad that I had to cover one eye to drive. And yes, the doctor finally saw it. He sent me to a neuro-ophthalmologist at UAB. He just "happened" to be doing research on Chiari, so he recognized it immediately. I felt so vindicated! At the time, I was only the 2nd known case in the USA. He sent me to Johns Hopkins for a 2nd opinion. Upon returning, I had surgery to remove a quarter size piece of skull tissue in the back of my head, along with the backs of the top 3 vertebrae to alleviate pressure on my brain. It helped, but I was never asymptomatic. The symptoms began to return, and I had another surgery in 2001. Again, it helped but didn't completely correct the problem. I still have tons of headaches (of course, brain cancer attributes to that too), double vision, and dizziness. I take medication that really helps with the double vision, so that's not really an issue any more.
Thirty-eight years is a long time. I'm tired and just want to go Home. I have headaches every day, but I'd been blessed to have a few weeks of minor headaches. However, that changed Monday. Today is Wednesday, and I've had a really, really bad headache since then. A headache this bad often lasts a week or more. I really covet your prayers. Please enter His Throneroom on my behalf and ask for relief. The pain, along with grieving for my Mama, is relentless. Maybe He's waiting on an army of prayer warriors to intercede along with Him. Please join the troops. I would appreciate it immensely.
The Arnold-Chiari Malformation that I have is due to my cerebellum being too far down and reaching into my spinal cord. The cord puts pressure on my brain, causing headaches, double vision, difficulty swallowing, dizziness, neck pain, unsteady gait, weakness, and ringing in my ears. My symptoms began in 1982 as headaches. Other symptoms started appearing a few months later. I went to several different eye doctors and told them about the double vision. At the time, the double vision would mainly occur when I was under a lot of stress. Since you can't schedule stress, they couldn't see it and really didn't believe me. That is, until late 1987 when I was doing my student teaching. I had an eye appointment after an especially stressful day at school. The double vision was so bad that I had to cover one eye to drive. And yes, the doctor finally saw it. He sent me to a neuro-ophthalmologist at UAB. He just "happened" to be doing research on Chiari, so he recognized it immediately. I felt so vindicated! At the time, I was only the 2nd known case in the USA. He sent me to Johns Hopkins for a 2nd opinion. Upon returning, I had surgery to remove a quarter size piece of skull tissue in the back of my head, along with the backs of the top 3 vertebrae to alleviate pressure on my brain. It helped, but I was never asymptomatic. The symptoms began to return, and I had another surgery in 2001. Again, it helped but didn't completely correct the problem. I still have tons of headaches (of course, brain cancer attributes to that too), double vision, and dizziness. I take medication that really helps with the double vision, so that's not really an issue any more.
Thirty-eight years is a long time. I'm tired and just want to go Home. I have headaches every day, but I'd been blessed to have a few weeks of minor headaches. However, that changed Monday. Today is Wednesday, and I've had a really, really bad headache since then. A headache this bad often lasts a week or more. I really covet your prayers. Please enter His Throneroom on my behalf and ask for relief. The pain, along with grieving for my Mama, is relentless. Maybe He's waiting on an army of prayer warriors to intercede along with Him. Please join the troops. I would appreciate it immensely.
Cindy, I finally finished your whole story today. I am amazed, and saddened, but rarely were you saddened, but much more grateful for the life you've lived. I'm adding you to my gratitude and prayers practice!
ReplyDeleteOh Klove! I'm so glad you read my blog! Thank you for your kind words!! ❤
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